mdlbear: blue fractal bear with text "since 2002" (Default)
mdlbear ([personal profile] mdlbear) wrote2008-04-29 08:16 am
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Sleepless in San Jose

Woke at maybe 2am and had trouble getting back to sleep. Brain wouldn't shut up. I'm reassessing some things, mainly about travel. (The [livejournal.com profile] flower_cat told her doctor about our zoo trip and he immediately wrote out a prescription for a wheelchair. His only questions were height, weight, and folding. But that's just part of it, and not even the hard part.)

About 4am the Cat woke as well; we took turns sleeping in a close embrace until the alarm went off at 6:30. Normally we can't sleep that way; I think it was just the exhaustion that made it possible. She said as I got up that I didn't even snore. She's sleeping soundly now.

Got up with my nose congested and my throat dry; I'm probably coming down with something. Make that have come down with something.

There are dry-runs all this week at work for a major technical review next week; today's is at 9am, which is an unusual starting hour for our normally laid-back California Research Center. They've also completed the process of moving the administrative staff into the offices next door, and swapping suite numbers. Starting today they'll be keeping our door locked, since there's nobody to watch it.

It'll be a little good deal less convenient, but since my office is only a few steps from the door, I was always the one who got tapped when nobody was at the front desk. So that's a win.

Every silver lining has a cloud around it, though, and right now my life is distinctly overcast.

[identity profile] harmonyheifer.livejournal.com 2008-04-29 09:30 pm (UTC)(link)
While we are all at Baycon, I would like to offer Colleen the use of my electric cart to get around a bit. Consider it a test drive, just like she would do with a car, if she is willing. I am able to leave it for longer and longer periods as I coast ever closer to remission and it sounds to me like Colleen is perhaps more in need of something that would promote more mobility and independence than either of you have realized.

Cynthia and Dr. Jane convinced me of the need for my scooter long before I would have convinced myself and I will always be grateful for that convincing. Life is too short not to have the very best quality of life we can manage. I suspect that right now Colleen's quality isn't all either of you would like for her. The fix for that is actually easier than you might think. Especially with the advice of someone who has already been down that road, not just personally, but on behalf of a lot of my patients over the years. The hardest part for me was just swallowing my pride and allowing myself to accept the help I so badly needed.

I have been where Colleen is, mobility-wise, and boy, do I know what it is like. If we can, Patrick and I would like to share with you both what we have found to be helpful. That is what friends are for, right? The silver lining on the could is bigger than you think.

*virtual hug to you both*