Done Since 2024-04-21

[mdlbear]

This week seems to have been an emotional rollercoaster, for no reason that I can discern. Probably missing something obvious. A couple of days with a lot of fatigue. I'm not sure I can tell the difference between depression and brain fog. I'm going to blame the radiation treatments anyway. One more week to go. I'm going to miss the people, and the structure the appointments gave to my days.

I don't claim to have gotten much done this week. I lived through it, but that's merely a necessary condition, not necessary and sufficient. I did have very pleasant appointments with my medical oncologist on Monday, and with my radiation oncologist and Spiritual Health clinician on Wednesday. And the seder Monday night at M and J's (m and j's father and stepmom) was very enjoyable, if a little long.

Notes & links:
0421Su
  & awake 3:00ish
  & awake 4:30ish
  * up 6:30ish; S=7:27, W=190.8; exercises
  * 06:56 abitaterone; 07:57 rest
  * H2O:  08:14, 08:42c, ???, 22:02
  : Looks like it was N making those charges on my AX, so I've gone through a lot of
    trouble for nothing, and will have to go through more trouble to fix it.  CRAP.
    *- respond to Lyft's email telling them that N's account is okay
    *- -call AX's hotline- _chat with AX_ and explain things 1-800-528-4800
  @ April 20, 2024 (Saturday) Cheering broke... - Heather Cox Richardson | Facebook
    " ...out in the gallery and among Democrats on the floor of the House of
      Representatives this afternoon when the House passed the $60.8 billion aid bill for
      Ukraine. The vote was 311–112, with all Democrats and 101 Republicans voting in
      favor and 112 Republicans voting against. One Republican voted present. "
  @ Elon Musk Turned Democrats Off Tesla When He Needed Them Most
  * CHARGE MOLLY! (see 15:04 above) Freddy's on Lake City Way.  30kW, which I think is
    Molly's top speed.
  * 15min:  laundry... loaded... sorted
  : Lyrid meteor shower peaks tonight and tomorrow night
  x 6pm PDT Rilla Heslin Celebration of Life and Memorial Filk -> missed :P
    I realy need to remember to set an alarm for EVERYTHING
  % noticed around 7:30ish that my left eye is hurting slightly; the outside corner of the
    eyeball is red.  Possibly due to rubbing; maybe also from sleeping on it.
  * eyedrops, senna, docusate tonight (21:59; took pm meds 9:30ish)

0422Mo  erev Pesach  Earth Day  * litter boxen
  & awake 2:56; trouble getting back to sleep
  & awake 5something
  & up 6:35; S=7:41; Dutch
  * abiraterone 6:35; rest 07:30 ]
  * H2O: 06:45, 07:40, 07:45, 09:41, 
  @ Earth Day - Wikipedia
  @ Earth Day: The Official Site | EARTHDAY.ORG
  @ Researchers: Windows Defender attack can delete databases • The Register
  * 8:30 be in house for Teams call with Dutch business lawyer
  * take backpack, laptop to appointments -> next time skip the jacket
  * 10:20 leave for 11:05 checkin for radiation therapy at Montlake 11:20 .. 11:40
    funny interaction -- they'd put in my name on Spotify, so of course we got CC+S.
    getting off the table, "I'd like to see it." -> "Give me a minute" and pulled out the
    two copies I'd put in my backpack for just such an occasion.
  * 12:30 checkin for blood draw at Fred Hutch  Bldg 2, 4th Fl.
  % it's a beautiful day out.  (I'm sitting by the window on the 4th floor sipping a mocha
    and munching a blueberry scone.)
  * 1:45 follow-up with Dr. Sunkara
    -> K low but in range, Fe low but anemia is a known side effect because the pelvic
       bones get irradiated.  Glucose a little high, but I'd just had a 12oz mocha.
    -> she'll put me in touch with the oncology social work team -- no telling about that
  % 16:05 simethicone and tums
  % 16:56 brain fog/lethargy
  * Seder at Lake City - use one of G's hats, since he's not going (did last time too)
    -> actually used the Turtle Fur beanie; couldn't find G's
  x take a box or two of liquid glycerine suppositories out to Lair -> I think I forgot
  % 00:23 senna and docusate.  Hope that isn't a mistake
  & 00:21 heading for bed

0423Tu
  & awake 3:30ish;  dry mouth
  & awake 5ish; dry mouth -> Biotène lozenge
  * up 8am; S=5:43+; Dutch
  * 8:05 abiraterone; aveeno on arms; biotène; 9:12 rest
  * H2O: 09:13, 09:30, 12:30ish, 14:18c, 18:39, 
  * guitar: about half of Bad Guys.  fingers hurt
  @ It’s Launch Day for NASA’s New Solar Sail Mission! – Small Satellite Missions
  @ NASA’s Voyager 1 Resumes Sending Engineering Updates to Earth – Voyager
  * take a box or two of liquid glycerine suppositories out to Lair
  * 10am Healing Center Memory Keepers grief support group.  Could have stayed til 10:30
  * 10:20 leave for 11:05 checkin for 11:20 radiation therapy at montlake
  @ Rev. Cecil Williams death: Co-founder of San Francisco's GLIDE Foundation has died
  @ That Man in the Gold Lamé Suit (Book Review) -  (Daniel Kelly) Phl Ochs
  * 3pm bookstore meeting -> so... not a bookstore, at least not at first
  % 17:03 writing stalled; sleepy; brain fog
  * $ extend Molly's OnStar sub (monthly, this time), using AX optima
  * 15min:  update AX Optima CVV in info file
  % L. eye looks just fine today, and doesn't hurt.  So nothing needs to be done.
  % 21:31 Bronx was demanding attention; figured out that he *really* wanted to go out to
    the Lair, like Right Now.  I am, for some reason, flat out of mental/emotional spoons
    and feel like I'm quietly falling apart.  Lack of sleep?
  * load drugs.  Bronx was very good and sat at the end of the high counter out of the way

0424We  * litter boxen
  & awake 3:30ish; dry mouth -> Biotène xylitol lozenge
  * up 6:30; S=7:47, W=190.8, BP=122/74, P=73; shower; ... Dutch
    % night sweat -> pad felt soaked when I woke up
  * abiraterone 6:35, 07:34 rest
  * H2O: 07:34, 08:19, ... 21:45st, 21:59
  * 10:20 leave for 11:05 checkin for 11:20 radiation therapy at montlake
  * 11:45 on treatment visit - Dr. Liao
    -> anti-inflamatories might help with the frequent urination -> ibuprofen or aspirin
    -> 400mg once or twice/day with meals
  * 2pm zoom with EG (45min) ... spiritual practices (from previous appointment)
    30m, due to a schedule crunch on her end.  Read through my list of beliefs (which I
    will post soon).  Had her send a message on MyChart, so now I can reply.
    (I  replied with the list, which I had to split because it was over 1500 characters)
    Told her about my first meeting with Colleen -- not sure how that came up
    -> assessment in visit notes included "openness to mystery"
    -> scheduled follow-up in a month.  spiritual condition (? don't remember clearly)
  @ The Forgotten Medieval Habit of ‘Two Sleeps’ The Robert Moss BLOG: Confessions of a biphasic sleeper
    Polyphasic sleep
  @ After Your Prostate Radiation Therapy | Memorial Sloan Kettering Cancer Center
    " Avoid having a colonoscopy for the first year after radiation therapy. "
  * 21:10 senna, docusate sodium, aspirin, fiber, sleepytime tea
  % couldn't find my phone. figured I'd left it in the house, but it turned out in the
    morning that it had fallen out of my pocket while feeding the cats

0425Th
  & awake 3ish?
  * up 6:30; S=7:57; ... Dutch (just before dinner)
    % cold.  stiff.  tired.  07:25 hot flash
  * 06:37 abiraterone; 06:56 400mg ibuprofen for joint pain; 07:36 rest of am drugs, fiber
  * H2O 07:41, 21:59
  [ % 6:36 piss.  08:03 lgs -> some type1 turds. ]
  @ 500 Mile Email • Absurd Bug Stories
  * call Fred's pharmacy to update card on abiraterone scrip 206-606-6500
    -> card# fixed, will be shipped to the UPS store at Aurora and 100th, arrives tomorrow
  * 10:20 leave for 11:05 checkin for 11:20 radiation therapy at montlake
    % not sure why it took me so long, but I found the stairs across the hallway from the
      elevator.  Faster than waiting most days and better exercise.
  [ % 16:08 piss.  Nothing but piss and gas since this morning. ]
  * walk:  (with m, to Monkey Grind) w=0.8mi, s=2278, 17hp, 22min;
    today: w=1.5mi, 20hp, 43mm, s=4056.  Not up to walking to Bartell, so I'll drive later
  * pick up j's meds at Bartell -> they told me to come back in 2 hours
  @ "Why I'm a Christian Pagan Unitarian Universalist", Elisabeth Geschiere. 3/19/23
    Elisabeth Geschiere on “Why I Believe Nonviolent Direct Action is Imperative” –
    Unitarian Universalists for Social Justice 
  * 6:15 pick up j's meds at Bartell  Lindor truffles for hazard pay; got home after 7
  * 21:40ish pm meds + aspirin, docusate sodium, senna, fiber (prunes)
  * order kibble.

0426Fr  * litter boxen
  & awake 3:30ish;
  * up 7:00; S=8:12, W=190.8, BP=113/73, P=73; exercises,... Dutch
  * 7:15?? abiraterone, 08:16 rest
  * H2O:  08:16, 13:30c, 13:58, 16:01, 17:ish:gin, 22:23
  [ % ~7:15 piss.  09:05 lgs -> lots of type4 turds;  11:30ish, ???, 19:36 piss ]
  @ Starbucks Has Lost Its Damn Mind. Adventures in missing the point | Simply Sophia
    remodeling and taking out all the tables and chairs??  (no clue about whether that's
    local or widespread, though)
  * 10:20 leave for 11:05 checkin for 11:20 radiation therapy at montlake
  * pick up abiraterone at the UPS store on the way back
  @ How the Writers Guild sunk AI’s ship | by Cory Doctorow | Medium
    " Unions are back, baby, and the NLRB has instituted a new, zero-tolerance policy for
      union-busting. Everyone is unionizing, from strippers to Starbucks baristas, and the
      writers just proved that no matter how horny your boss is for replacing you with an
      AI, a union will cool his ardor. "
  @ TESCREALism: The Acronym Behind Our Wildest AI Dreams and Nightmares
    " transhumanism, Extropianism, singularitarianism, cosmism, Rationalism, Effective
      Altruism and longtermism. "
  % 13:58 tired/fatigued/lethargic.  Vaguely out of sorts.
 * walk: taqueria via Linden 15:36; w=0.4mi, s=1388, 18min, 7hp
   % fatigue really kicking my ass.
  * respond to social work referral -> call: 206-606-4959 -or respond on mychart-
    " Clinical oncology Social Workers are available to provide emotional, psychological,
      and practical support for patients and families.  [...] They work closely with FHCC
      Psychiatry and Psychology and discuss interventions that enable patients and
      families to maximize patient and caregiver psychosocial functioning; foster
      adaptation to health crisis; and promote healthy coping. "
    -> requested video call sometime next week.
  % 19:35 none of the obvious simple alternatives for dinner seem very appetizing
    Of course, I did have a late lunch.  -> apple and peanut butter
    21:44 nutelloid on rice cake for dessert
  [ % 22:21 mix of type1 and type2 turds ]
  * 22:24 docusate, senna

0427Sa Koningsdag (NL)
  & awake 3ish.  Biotène
  & awake 5:30.  Did not really try to go back to sleep.  cuddled Ticia
  * up 6:30; S=7:00, W=192.2, BP=114/70, P=68; exercises, Dutch
  * 06:40 abiraterone, 07:42 rest
  * H2O: 07:42, 09:56, 11ish:c, 20:52
  % 08:04 and cleverly poured coffee into my water glass.
  [ % 09:24 large type3/4 turd; minor stretch pain.  10:45 mixed type1/2/3 turds.  ]
  @ Koningsdag (NL)
  * 15min:  bring disks, misc. bin out to Lair.  Missing glasses were on Molly's back seat
  * TP needed in Lair
  % 09:38 what am I _doing_?  What am I doing _here_?  What _am_ I?
    Ame's answer: "you're dissociating, Dad."  um... I sorta knew that.  why, though?
    And why am I not doing things when there's so much that needs doing?
  % noticed that I don't seem to be having as much (joint, muscle) pain as before.  WTF?
  [ % 12:06 piss; 18:47 small type2 turd ]
  * 15min:  dishes
  * 12:42 400mg ibuprofen - next after 6h (18:45) if needed
  * 15min: update credit/debit cards on $A
  $ C $115 to Amnesty International via USB
  * 15min:  mail sorting
  * 15min:  some tab cleanup; rm pdf file from Downloads that was already in books/health
  * 15min:  some name regularization in books/health
  * walk:  N around block 16:51, w=0.2mi, s=852, 6hp, 8min.  % some hip pain
  @ Best Accessible Travel Apps and Services for Travelers with Disabilities
  % I am also, probably, depressed.  I don't know what's happened in the last few days,
    except maybe N's realization that a bookstore isn't going to work.
  [ % good-sized type3 turd ]
  % went to bed early -- a little after 9pm.  Worked on Sherman for a while, but really
    too wiped out for anything but updates and cat cuddle

Comments

[solarbird]

yay just one more!

hopefully!