mdlbear: blue fractal bear with text "since 2002" (Default)
[personal profile] mdlbear
0604 Th
  * up 6:30; W=189.6; drugs, nose, teeth; 6:40; coffee, C
  & left shoulder still hurts
  * 7:50-8:00 meditation, body awareness
    ! calm, relaxed.
  & 8:30ish meditating while waiting for Colleen to get off commode
    ! calm; (after) glad that I'm getting back into the habit
  & Got Belen's cell # - wants Colleen to call re: Jilara's truck.
  x Kat would like a virtual presence by this Wed.
  @ bing.com beats Google (slightly): caregiver support group san jose
  & not much luck finding local support groups
    and didn't call Kaiser, either, or get there in time to ask in person
    ! discouraged
  & major cleanup required
    ! stressed, discouraged, angry, depressed; physically exhausted
  & Colleen took a shower!!
    ! happy; mudita.  Go Turbo-Snail!
  & Trying hard not to think of how much we're paying for health "care" this
    year, between drugs, therapy, equipment, and supplies.  The FSA doesn't
    cover half of it.
  * Split the Tres Gique concert at Baycon
  * bath ~11:30; bed ~midnight

The biggest thing I accomplished yesterday was splitting up my recording of Tres Gique's concert at Baycon. But by far the best thing that happened was Colleen taking a shower. Getting her up the two small steps and into her walk-in tub was a bit of a project, but it was the first time she'd had any kind of real bath since the middle of February, and we were both ecstatic over it.

No walk, though, very little actual work, and no luck finding a caregiver support group. I'm going to simply walk in to Kaiser this morning if I can't connect by phone. Communities, if they have them, mostly don't appear to put listings on their websites. You'd think that a website with the name California Caregiver Resource Centers would have something more useful. So, you might think, would the Family Caregiver Alliance with which they're associated. The latter does appear to have a listserv that may be useful.

Support Groups

Date: 2009-06-05 08:59 pm (UTC)
texxgadget: (Default)
From: [personal profile] texxgadget
Unfortunately, support groups are often not listed under "Support Groups" but rather
than by the malady that requires the care in the 1st place.

In my moms case, the support group is under FTD, the particular sub category of
dementia that has afflicted her.

There should be a group listed under "home caregiver support group" but for
some obscene reason, they dont list groups that way.

Ill light a "virtual" candle for you guys and hope for improvement.

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