mdlbear: blue fractal bear with text "since 2002" (Default)
[personal profile] mdlbear

It's been, dare I say it, a pretty good week. Especially after N and the kids got out of quarantine, came across the deck, and spent most of the rest of the week in the house with us. It's so good to have our family together again. Most of it, anyway.

There were also beignets, latkes, roast beef, and drunken chicken; singing last Sunday (by myself), yesterday, and today; and E's second anniversary. And the Electoral College voted and officially declared Biden the winner of the presidential election.

There was also a great deal of medical hassle for Colleen, including an ER visit, but that's normal these days. Related to that, for some reason we never thought to investigate (and nobody ever pointed us at) resources for people with a spinal cord injury. That's because what Colleen has is what's called an incomplete SCI. Links under Sunday 12-13 if you're interested.

Notes & links:

1213Su  * litter boxen
  & Awake 3ish; C already awake
  * up 8am; W=195.6, S=7:31, BP=114/71, P=60; shower
  % decided to give my back a break and stay in my yukata all day.  Good call.
  @ John le Carré, Best-Selling Author of Cold War Thrillers, Dies at 89 - NYT
    John le Carré, a Master of Spy Novels Where the Real Action Was Internal - NYT
  : S making beignets.  We'll see how that goes.  She also tossed almost all the
    leftovers, so the dishwasher is very full.
    -> beignets very good; N and the kids liked them too.  I ate more than I should have.
    -> deep-frying works very will with small batches in an 8" skillet
  * Gphoto reminded me that it's E's second anniversary today, and the approximate
    anniversary of Mom's 95th and 99th birthday parties.
  / 1000ml in bag (not emptied last night); minor cleanup; flush
  % back hurts (p=~4) -> heat
  @ BREAKING AND ENTERING - MOLLY JOYCE
    Form and Deform - YouTube
    Breaking and Entering | Molly Joyce - Bandcamp
    (via Composer Molly Joyce mines disability as source of creativity - Washington Post)
  @ Spinal Cord Injury Sexual Health Website - Sex and SCI (via Roll with Cole & Charisma - YouTube) (via Interabled YouTubers, ‘Cole and Charisma,’ Celebrate Wedding - New York Times)
  @ Home – Spinal Cord Injury BC
    -> for some reason we don't appear to have ever investigated spinal cord injury, and I
       don't remember anyone _ever_ pointing at SCI-related resources.  Apparently this
       is not unusual: 
    -> The Misconceptions of Living with an Incomplete SCI
  * Singing:  October Country, Ship of Stone
  / 1200ml in bag (emptied before bed)
  % meloxicam
  / 700ml in bag (not emptied)

1214Mo
  & awake 4ish?
  * Up 6am; S=7:04, BP=118/71, P=61;
  @ Biden Transition Live Updates: Electoral College Affirms Biden’s Victory - NYT
    Electoral College formally validates Biden’s victory in presidential election, giving
    him 306 votes to Trump's 232 - AP 
  & V calling WhidbeyHealth -> they're calling home health
  / cleanup (V)
  & got a callback from Dr. Hecker's (GI) office; scheduled video call for Th
    -> needs a calprotectin stool test -> V going to Clinton office to pick up sample kit.
  & callback from Dr. Dixon's office; they've ordered a renal panel 
  @ San Francisco's iconic Cliff House restaurant to close :(
  * call Al about Wednesday's walkthrough with Downsizers (after much email tag)
  % meloxicam 10:15ish
  / ~600ml in bag (not emptied)

1215Tu
  * up 6:15; S=7:08, BP=110/69, P=63;
  @ Vaccine Information :: Washington State Department of Health
  @ Over-the-counter home test for COVID-19 gets US green light
  / 900ml in bag
  / slipped getting out of bed -> called 911 for assistance.  She'd put the bed up too high
  * 1ish (HH)Diane -> changed catheter.  No sample because she hadn't had much to drink
  % 2:30 kind of drifting.
  * */15   CPAP:  change paper filter, wash tub                  */{1,15}
  * Colleen to Clinton for labwork (renal panel)
  @ Jeffrey Paul: On Trusting Macintosh Hardware tl;dr: you can't.
  @ CryFS: A cryptographic filesystem for the cloud
    contents, names, and metadata in small fixed-sized blocks
  ~ 10pm can fetch box room laundry. (actual time more like 10am -- oops)
  % meloxicam 10:45

1216We
  * up 6am; S=7:07;
  @ The Supreme Court Rejects Opportunity to Roll Back Marriage Equality (minoanmiss)
  * 7am zoom call with Al, Downsizers.  Alarms set for 6, 6:30
  * */15   pay AX card (due 12/18), Molly (due 12/22).  AX Platinum due 1/3
  % stomach feeling slightly queasy.  Weird.  Or maybe just hungry (as opposed to wanting
    to eat something, which is more usual.)  -> seems a little better after lunch
  * 11am zoom call with Al, Downsizers.  Set alarm for 10:55.  Second of 2 2-hour calls.
    No sign of the hedgehog brush.  Gusti Wyman's mandala, the needlepoint tryptich from
    the Wilton property (bridge in the middle), assorted turtles.
  % 2:20 BP=154/84 P=62
  * clean laundry -> box room
  / long call with nurse at Dr. Hecker's office.  Recent history.
  % 8:55 realized that I'm shivering, and should put on something warm.
  / still leaking, flush.  200ml in bag, not emptied
  % meloxicam 10:45
  
1217Th
  & awake 2:50; S=3.5;  % heat
  * up 8:20; W=192.8, S=7:56, BP=112/69, P=66;
  / awakened by call from Dr. Hecker's office; they want to test for C.Diff and COVID
  / 200ml in bag
  @ US cybersecurity agency warns of 'grave' threat from hack
    " Trump, whose administration has been criticized for eliminating a White House
      cybersecurity adviser and downplaying Russian interference in the 2016 presidential
      election, has made no public statements about the breach. "
    Opinion | I Was the Homeland Security Adviser to Trump. We’re Being Hacked. - NYT 
    " President Trump must get past his grievances about the election and govern for the
      remainder of his term. This moment requires unity, purpose and discipline. An
      intrusion so brazen and of this size and scope cannot be tolerated by any sovereign
      nation. 
      We are sick, distracted, and now under cyberattack. Leadership is essential. "
  * N and kids out of quarantine.  HUGS!!
  % meloxicam 10:44; heat for back pain
  / 300ml in bag

1218Fr
  & awake briefly sometime between 12 and 3am, IIRC.  Wasn't really awake.
  / vomiting
  * up 8:15; S=8:25; exercises for the first time in a while
  * singing with m and N:  Ship of Stone, Bigger on the Inside.
  * Colleen: call  * gastroenterologist  * nephrologist  425-339-5431, * urologist
    both Dr. Hecker's office and Dr. Juaire recommended ER.
    -> we each had a latke before leaving.
    -> In ER as of 6:45; no visitors (which is new) so I'm in the car waiting for a call.
    -> -Will- call them ~7:45 if I don't hear back.  She didn't bring her ID; growf.
    -> 8:09 they're going to try to get a larger catheter into her; they were having
       trouble and couldn't do it quickly.
    -> call back ~10; make sure they check kidney and GI issues thoroughly before they let
       her go.
    -> called back ~9:45, determined that it would probably be an hour or two, and N
       offered to come along as a second driver.  arrived home 10:20ish.
  : very windy.  Presumably the high wind warning was extended -> until 8pm
  % I feel like I've forgotten how to do anything but scroll
  / ER called 12:53am; home a little after 4am
    -> took 4 tries to get a catheter installed; bladder scan, bloodwork, urine culture,
       COVID test, (results for the latter two in a few days)
    -> follow up with Dr. Dixon ASAP
    -> (paper)scrip for cipro

1219Sa
  * up 8am; S=5:12;
  * bring (paper)scrip to RiteAid -  * pick up ~11:30 along with S's
  / 200ml in bag at 11am; 225 at 12:40
  / stool sample.  cleanup.  pasty.  Leaking.
  * bring stool sample to Clinton.  Apparently Dr. Hecker doesn't know that sending a lab
    order to the hospital doesn't send it to Clinton.  Neither did I.  Growf.
  @ Mozilla - *privacy not included buyer's guide to connected devices
  * 5:30 start drunken chicken  2018/05/17--drunken-chicken.html (local access--why?)
  / major+ cleanup.  She was afraid to use the shower, so had to use washcloths.  All of
    them.  Stopping after cleanup before goop for meloxicam (11pm) and heat.
    % stressed.  No voice control; some whining
  % wound up sleeping between the two cats -- somewhat inconvenient

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