Done Since 2021-05-09
2021-05-16 04:35 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
mdlbearWas it a week? It seemed to go by very quickly. Colleen's care team at UW was very good about keeping us updated. She had some unexpected setbacks Thursday, so she's still at UW. But they also started allowing visitors on Thursday -- N took the first visit because I wasn't up for the drive down. I did visit Friday and Saturday, spending the night in between in Seattle. None of that was particularly good for my back.
Unless something else goes wrong, we're expecting to have Colleen back on the island tomorrow afternoon, in the SNF formerly known as "Careage" (and now called Regency Coupeville). Their policy for indoor visits is very restrictive, but they allow more frequent outdoor visits; hopefully they're sheltered because the weather through Wednesday looks a bit dicey.
$writing-project was stalled, except for an hour or so yesterday. Focus? Isn't that something for cameras? I did get a few smaller tasks done, including resurrecting Mom's iMac and iPad. Did very little on those besides scanning the iMac for files of possible interest.
There are medical details in the notes, so you might want to skip them again this week if you find such things triggery. However, you might like: Scientists Have Studied the Mysterious Behavior of Cats Sitting on Squares (it seems that cats not only like to sit in boxes, they sit on squares drawn on the floor, and even on optical illusions that look like squares) and J. Haydn: Symphony No. 60 "Il Distratto" | Giovanni Antonini | Il Giardino Armonico (Haydn2032 live) - YouTube (by way of madfilkentist). The thing I really like about that performance is the way the musicians look like they're up to no good.
0509Su Mother's Day * litter boxen
& Up 5ish; S=5:32, W=195.6, BP=125/76, P=60; shower
/ called her ~8:25; she's miserable. The only place they could get a midline in was her
_left hand_ -- that's going to make things like exercise difficult.
@ 2020-2021 Federal Income Tax Brackets & Tax Rates - NerdWallet
@ Scientists Have Studied the Mysterious Behavior of Cats Sitting on Squares
* dragged Mom's iMac upstairs to the Box Room. Found kbd and mouse. Need batteries.
% after that + the catboxes I'm a great deal weaker in the legs than I like or expected
* fired up Mom's iMac -- it's from 2011, running Sierra. 4GB of RAM, 500GB SATA drive.
Several different versions of the memoir and supplement. Home Health bills.
/ 4:30ish heard from Colleen's nurse, and followed up with C herself. No PT yet -- on
the schedule for tomorrow(?), but they put a new catheter in, in the right place this
time, and it's working nominally. According to C they will probably have her on TPN
for bowel rest to let the fistula heal. The nurse asked whether she can walk, and I
gave her the usual summary. She still hurts like hell, but it's getting better.
She's been seen by gastroenterology, urology, and I think nephrology; more scheduled
for tomorrow. She's been told that she's a poor candidate for surgery. Which we knew
/ 5:35 Doctor called, basically confirmed all of the above; there's the fistula and also
some other bowel perforation, but that seems to be contained. I asked about H.pylori,
and she's negative for that so all she needs for the ulcer is antacids. She's also
getting bicarbonate for acidosis (which we've seen before). Waiting for blood culture
results to see which additional antibiotics she might need. They can't put in a PICC
or central line for TPN until they've taken care of the blood infection
: N suggested some guitar noodling but otherwise thinks I'm taking decent care of myself
/ called 8:40 or so, crying. She hurts, and she can't color or play games.
* finished bottle of Ranier gin (somewhere close to...) (0512)
-> continued working on the left-over Gordon's
* 15min 10:15 a little guitar noodling. -> I'm really out of practice.
% 10:45 very sleepy. Bed.
0510Mo
* Up 5:30ish; S=6:33;
/ called C 9:45 -- they're going to put in a central line today; there will be TPN
~ Colleen wants a bouquet of lilacs. Suggests teleflora or bouqs -> don't have lilacs
Used AX on teleflora.com - Teleflora's Morning Melody - all purple, in a square vase
-> apparently it's not available until tomorrow. The call to tell me that and
reschedule was almost incomprehensible. Maybe it worked.
~ trying to reach Freeland clinic to cancel Colleen's appointment tomorrow; they're not
answering their phone, so sent message to Dr. Dixon via web form.
~ phone survey from WhidbeyHealth Med Center; bungled an answer and left message to call
me. Attempted to log in to _hospital_ portal, but got errors. sent email. Error
message had a phone number, but it's disconnected.
% I appear to have wasted an hour on WhidbeyHealth and their website.
% why does it feel like Tuesday?
/ 4ish call from Colleen - they have a central line in, so she'll _eventually_ have less pain
* Walk to Middle and back
* Did some more exploring on Mom's machine; set up account for myself, with ssh
@ Crafting Interpreters
posts taggeg with crafting-intepreters – Chelsea Troy
$ I HXS $21.07 from CDBaby
* guitar - Bad Guys
0511Tu
& Awake 4:30ish; down 5am but didn't sleep
* up 6ish; S=5:47;
/ 8:45 call from C - she's on a regular diet. The menu is spectacular, including things
like bagels and cream cheese, and ethnic items like naan.
They may open for visitors later this week
/ 1:20 call from (med student on C's care team)Macy - everything going well; they're
expecting the fistula to close on its own, and she sat on the edge of the bed with PT
~ 2pm Colleen Dr. Dixon (check time) -> called to verify that they'd gotten the message,
but their answering machine is still a black hole.
* hide local links in web view of h.home.html. Lots of stupid mistakes. put h.favicon
and link-page.css into site/, and make Mathilda/web/site to match so that all the
relative links work in both places. Also fixes the favicon for h.home on the web
Note that there may still be links to /style.css under user/steve
/ 8ish call from C; tasty dinner. Her kindle paperwhite isn't charging. Hopefully it
just needs a different charging cord. Meanwhile she has her tablet.
% 11:30ish sleepy
0512We
& Awake 4am; 4:25 ibuprofen, heat for lower back (on the right)
-> 5am went to bed and fell asleep hugging Ticia
* up 7am; S=5:48;
/ call from Colleen - she may be leaving hospital at the end of this week
@ The Strange Tale of Remdesivir and a Black-Market Cat Drug - The Atlantic
@ Blogging For Devs: Learn to Grow Your Developer Blog free email course - S(L)
* 15min: working with Mom's iMac
* 15min: sorting in garage - I think I have R's, E's, and Mark's stuff sorted.
one box repurposed (my electronics -> R's overflow), one large box ready to recycle
Brought up Mom's iPad; ordered (lightning)charging cable - Anker via $A
* */1 bio-one in drains: * box room sink, & toilet, x shower
* 15min: water C's (indoor) plants
* 15min: email to Quicksilver Construction. (sent 2:26)
% at 3ish I'm still tense. WTF, brain?
-> 5:34 callback from Jesse; gave the household card number. Verified start date.
* clean up style.css links, mostly in s.s.net -- they should point to /site/style.css.
In some cases they were pointing at /style.css.
/ 9:15 call from Colleen - she's getting an(other) MRI
* ordered another 5lbs of matzoh -- Streit's this time.
0513Th
& Awake 2ish; back to bed 4:15
* up 7am; S=5:41;
/ 9:30 call from (social worker/case manager)Karin @UW 206-598-8202
Where she has to be to come home / Eden home health / Careage if possible
/ call from Colleen. 4 sit-stands but shaky; being treated for afib.
she is now allowed a visitor. 1 per day.
/ 12:10 call from Karin -- she's going to be transfered to rehab tomorrow afternoon
assuming nothing comes up. She'll be going to Regency (FKA Careage)!
/ afib -> beta blocker: propranolol, or possibly metroprolol -- didn't quite catch it.
/ N is going to visit Colleen this afternoon.
* */15 pay AX card (900, from UB), Molly (from RE)
/ call from (admissions coordinator)Ashley at Regency Coupeville. Incomplete notes
Told Colleen about limited visiting hours; she said "we'll manage", seemed cheerful
* 15min: go back and fill in the admission/transfer/discharge flags in *.done
/ N went in to UW and spent a couple of hours with Colleen.
* email N the imaging report about the catheter
* made dinner: stir-fried pork with onions and bok choi. Most of the time went into
trimming the meat, as usual.
* charge and investigate Mom's iPad. I don't think I have a good use for it. R?
% how did it get to be a quarter of ten?
% 10:40 sleepy
0514Fr
& Awake 5am;
% heat for lower back (R)
* up 7:20; S=6:38;
: changing batteries on my mouse and Desti reached for it. Because cat and mouse.
/ 9am call from (med student)Macey: abcess has gotten bigger; putting in a drain; she'll
be at UW for at least a couple more days.
-> call from Collee 9:25 they also found a blood clot in one of her legs
@ J. Haydn: Symphony No. 60 "Il Distratto" | Giovanni Antonini | Il Giardino Armonico
(Haydn2032 live) - YouTube (madfilkentist)
Haydn2032:
" 107 Haydn symphonies until 2032, Haydns 300th birthday, together with the Basel
Chamber Orchestra, Il Giardino Armonico and Giovanni Antonini. "
. track down the Sherlock Bear picture (to give to G) -> not under bed or in garage
/ call from (social worker)Kelly(?) pushing expected discharge date to Monday
-> confirmed 5:14pm
* drive down and visit Colleen -> second car in line for the 12:30 ferry - Rm 4342
/ (nurse)Emily - the abscess isn't in a place where they can put a drain, so no surgery
/ Macey - the social worker is making calls to try to bring her discharge date forward
to tomorrow or Sunday. Blood thinner - heparin now, pyxadan after discharge
/ Confirmed that she will be transferred Monday; confirmed Dr. Harper (Harborview)
/ 5:20ish Dr. Trudeau. anticoagulant - apixaban - she'll need an anticoagulant life-long
due to afib Apixaban - Wikipedia
(doesn't appear to be on Express Scripts' formulary)
% decided to spend the night in Seattle because I was too shaky from not having eaten
& sleeping in m's room. N wanted me to go there when I started falling asleep in my
chair, but that fails because that room has noplace to sit and read/computer
% I think the last time I was able to read in bed was when I was 12.
% heat for back pain -> went to bed somewhere between 10:30 and 11
0515Sa
* up 5ish; S=??6ish
% naproxen and heat for back pain (lower right)
% 6:30-7ish dozed a little in the chair. I obviously need more sleep
~ noon C, S vaccine Oak Harbor Island Drug -> cancelled, ignore any reminders
x Join NAMI Washington on Saturday, May 15th, at 11-12:30PM for a Wellness and Self-Care
Workshop! register via email from Katherine Seibel <kseibel@nami.org>
* renew OnStar subsc.
-> bait & switch. The email said "renew your plan for $19/m|199;y", and mentioned 2
other plans (protection and guidance, besides the one (essentials) which I already
had. But the page the buy button took me to had the price as 267/y. The agent I
chatted with determined that the $19 plan was "basic", which does practically
nothing. I renewed my existing plan but intend to raise a bit of a fuss. The main
post will be on DW, but I expect a post on the face place will get more attention.
-> conf. page says to press the blue button to complete it also, saving the
confirmation rather than printing it produces a blank page. There didn't seem to
be any _reason_ why they wanted me to press the button, though the agent did
confirm that the plan had been reviewed.
* Stopped at Freddie's on 85th before heading down to see Colleen
/ she was having trouble with the Kindle app, which turned out to be not having signed
in. The CAPTCHA proved to be annoyingly difficult.
She is also having trouble with her paperwhite -- almost certainly a piece of grit or
fluff in the charging port -- plug rocks back and forth and sometimes connects
/ 2:25 update from nurse - mostly (the usual) stuff to watch out for - signs of stroke
are the most important right now.
% sleepy, headache
% 9:30 meloxicam and heat for back pain; sleepy
* */15 CPAP: change paper filter, wash tub
% 11ish tizanidine - it does appear to have helped.
no subject
Date: 2021-05-17 09:38 am (UTC)My Mum's 2014 iMac is currently on Mojave and was slow due to its internal hard disk, but now that I've got it running from an external Thunderbolt-powered SSD it has a new lease of life, and I should be able to upgrade it to Big Sur at some point and give it several more years. Eventually, I can see her using an Apple Silicon iMac, which would be just fine for her needs. Mum also has an iPad Mini 2 which is still working fine.
I'm planning on keeping my iPad Mini 4 around for as long as it'll work, but repurpose it as a music player / ebook reader/ radio / meditation device. I'm waiting to see what Apple's plans are for larger iMacs, but my current machine is in good health and plenty powerful so I'm good for now.
no subject
Date: 2021-05-17 06:46 pm (UTC)Mom's is mid-2011, running Sierra and not upgradable. So it's newer than my 2009 mini, but not by much. I don't see a use for it right now, but it's the only thing I have that will read her files, some of which I do need. Or want, anyway.
(Insert rant about using dates and code names instead of version numbers.)
The iPad's model is listed as MD510LL/A; I have no idea what code name or short model number that translates to. (I'll have look it up, I suppose.)
ETA: actual model number A1458, which I had to use my phone as a magnifier to read off the back cover. So 4th generation, around 2012.
no subject
Date: 2021-05-19 02:51 pm (UTC)no subject
Date: 2021-05-19 03:35 pm (UTC)She's out of the hospital as of Monday afternoon, when she transferred to rehab. This makes her third hospital and second SNF in this round. Hopefully we'll get her home in a week or so.
no subject
Date: 2021-05-19 05:16 pm (UTC)