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mdlbear: blue fractal bear with text "since 2002" (Default)

NOT a good week, modulo a couple of things. It started at bedtime last Sunday: I asked Colleen whether she was ready to go to sleep and she had trouble answering. I tried a couple of times and a few more questions, and after five or ten minutes decided to call 911. Good call.

Apparently mental confusion can be a side effect of a massive infection. She was released Thursday. If you're easily triggered by medical TMI, you might want to skip the notes.

After visiting Colleen in the hospital Monday, I drove up to Oak Harbor (for those of you not familiar with the island, the hospital in Coupeville is about 2/3 of the way there from home, so it made sense to combine trips) and picked up my new facehugger. It has a humidifier, a cellular modem, bluetooth, and a very comfortable mask (Philips Respironics DreamWear). First time I've had a mask that didn't leak. That was the first good thing this week.

The second was a very good singing lesson, and the third was making this post about planned projects -- we'll see how that goes.

Thursday was rough. For some reason, after taking Colleen home from the hospital, I ended up both physically and mentally exhausted, and in pain from what appears to be a torn muscle in my left arm that's been bothering me for a while. I was close to the edge, and over it a couple of times, for the rest of the day. Friday was worse.

The fourth (and last) good thing was taking another run at my taxes and finding out that I'm probably not going to owe anything. That, however, was blown all to hell by finding that the latest invoice from the builder was more than I had in my checking account (I'd known that was coming, but it was still alarming), and then taking another run at the budget spreadsheet and finding myself about $1500/month short. It went up to $1900 after I found a couple of cells that hadn't gotten added with the rest of the column of annual expenses. I don't usually have trouble with Friday the 13th; this year was an exception.

I spent Saturday mostly being desperate and despairing. I'm going to need an income, and sooner than I'd expected. And my self-confidence is completely shot at this point. N finally got me calmed down by telling me to concentrate on self-care for the next couple of days; after that we'll work something out. I remain skeptical about that. After enjoying a year not working and getting very little else done, things don't look good for finding work. The projects list was meant to improve my marketability as a freelancer, but I don't have the year or two it would take to build up a reputation and a steady income.

I'm reasonably calm at the moment, but it still feels like I'm re-arranging the deck chairs on the Titanic. Which sank exactly 106 years ago today.

In other news, the copy of The Annotated Thursday that I ordered ten days ago is scheduled to arrive... next Thursday. I have no idea what that is supposed to mean.

Notes & links, as usual )

mdlbear: (river)

So here we are, in the middle of National Invisible Chronic Illness Awareness Week. I first became aware of this two years ago, and kept putting off posting. I'm not, after all, disabled -- you wouldn't know to look at me that I have multiple chronic illnesses. That I'm limited. Most of my limits aren't physical, but that doesn't mean they aren't there.

"Out of sight, out of mind"? Not so much.

So let's get the obvious physical problems out of the way first. The biggest one is sleep apnea. Hence the "facehugger" userpic -- I sleep with a CPAP. With it, I can get a halfway-decent night's sleep. Without it, I snore loudly, wake up tired, and have a greatly increased risk of heart attack or stroke. I like my facehugger, even though it's annoying and takes up a lot of space in my carry-on luggage. I worry about the power going out, though. (Yes, I have a UPS for it. Thanks for asking.)

The other one is Celiac disease. Also known as "gluten sensitivity". "People with milder coeliac disease may have symptoms that are much more subtle and occur in other organs rather than the bowel itself. It is also possible to have coeliac disease without any symptoms whatsoever. Many adults with subtle disease only have fatigue or anaemia." Yeah. That.

If I eat wheat, rye, or barley I only get a little bit of intestinal pain. What I get is mostly more depression.

One of the two mental illnesses I have is called dysthymia. It's not the same as major depression -- you can think of it as chronic, minor depression. With emphasis on the chronic part. I literally can't remember when it started. Can't remember when feeling "ok" didn't mean feeling noticably better than usual. I do remember reading a post where someone talked about "reaching out for joy" and not having any idea what she was talking about. I still don't, really.

I'm taking an antidepressant now, and it's worth the side effects, but it's not a "cure" -- all it does is move my baseline up a little, so that "ok" is normal and "good" isn't too unusual.

The other thing the antidepressant does for me is give me a little more "cope". I can usually deal with setbacks and stress without falling apart or becoming paralyzed and unable to function. Usually.

The other one is alexithymia. That's the one that's really hard for me to describe, because what it means is that I find my emotions hard for me to describe. Usually, they're hard for me even to notice. I can sometimes notice that I'm happy if I can catch myself smiling. If I'm shaking, it may take me hours -- or days -- to figure out where I was because I was afraid, angry, relieved, happy, or just hungry.

Maybe it ties in with the disthymia -- it's probably hard to learn to recognize emotions when your range mostly goes between "blah" to "ok". Maybe it ties in with being easily overloaded, so that I learned to block emotions rather than being overwhelmed by them. I'm still working on it.

So... there you have it. Nothing that rates me a good parking spot, or a reserved seat on the bus. I could walk for five miles any time I wanted to. But I don't usually want to -- that's how disthymia limits me. Walking feels "good" for some definition of the word, but I don't know that definition, so I don't have a good way to remember how it makes me feel. That's how alexithymia limits me. I could go on.

But I won't. I think I'll stop here. I'd go have a beer, but it's made from barley.

mdlbear: (g15-meters)

There was a power outage yesterday evening at the Starport; no harm done, but it triggered some thoughts. Here's the raw data:

  : UPS battery life on nova is under 15min.  That's miserable.  
    stargate:  107min,  5.0% of 865W = 44W  (includes DSL router, switches) 
    nova:       13min, 16.9% of 260W = 44W  Oh.  (varies down to 33)
    trantor:	70min,  9.0% of 780W = 70W
    CPAP rated at 48W, but hopefully uses less -> 30 open; 6 idle  Eeep!  
      That's maybe 3h on its XS1500 UPS.  The alarm had better wake me up!

Ok, so there are two obvious problems here. The first is that Nova, the fileserver, has a miserable uptime. That's not so bad, since the network is perfectly usable without it as long as all you want to do is surf. The other is that my CPAP, which is on the same kind of UPS as stargate (the router) has a much higher power consumption than I thought. The battery wouldn't last the night. Which means that I would probably die in my sleep if the power went out. Not so good.

There are two less obvious problems: Nova's disk took over an hour to fsck. That's a long time to boot, but not not too bad because, as I mentioned, the file server isn't all that essential in the short term. What's more of a problem is the backup drive on stargate. I really don't want my router taking half an hour to boot.

I also discovered that my wireless phone base station is on its own UPS, a 500VA APC that beeps when the power goes out. One of the thing I really like about the XS series is that you can turn the power-fail alarm off. Great in the office. Not so great for the CPAP!

So the current plan is to move the bedroom UPS into the office for Nova, and for the short term move Nova's SmartUPS 420 into the bedroom. Because it beeps. Eventually I'll want something bigger.

I also want to put the big partitions on a once-a-week unmount / fsck / remount routine. Easy. Along with that I want to move the router to a 2.25" drive (which I just happen to have sitting around) for lower power consumption. (I'd rather move the router to a solid-state drive and make the laptop drive external. But that will have to wait.)

ETA: I just found a stack of unpaid bills including this month's energy bill -- 28.2KWh/day, as opposed to 35.1 last year, so a little under a 20% improvement. (The gas bill was 63% more, but we won't go into that. yet.)

ETA: (0403) Actual measurement on the CPAP shows that it uses between 6 and 12 W in normal operation, so the XS1500 will keep it running all night, barely. That's encouraging. May keep things as they are for a while.

mdlbear: blue fractal bear with text "since 2002" (Default)
raw notes )

It felt like a very long day, from getting up early to having a hard time getting to sleep and getting up for a hot bath, which worked as it usually does. But it was productive, even if slightly frustrating.

And I made the big career decision that's been hanging over me for the last month or so: deciding whether to continue in my current job in a production environment, or go back to R&D at the start of the next fiscal year, next April. I chose to go back -- or rather forward, because the research lab I came out of has a new name now, and a focus more on advanced development and innovation than on research. Since I've always been more of a tinkerer and a toolmaker than either a researcher or a product developer, it was a fairly easy decision.

I'll miss the people, the thrill of working on real products, and the short commute. I won't miss the 9-4 core hours and the software engineering work style. I'm not a software engineer, and I'm not even a terribly productive programmer anymore. I make a better mentor and architect than I do a code monkey.

In other news, my new facehugger mask arrived (and worked well all night), and I helped Chaos set up chaoswolf.org and kat.savitzky.net under her own home directory on Dreamhost, and under git control. Go me.

Some good links up there under the cut.

mdlbear: blue fractal bear with text "since 2002" (Default)

Over the course of the last couple of mornings I've finally finished fixing my toolchain software, and in particular the rather misnamed album.make, to handle multiple named sessions (concerts, for example) in a single directory. There are, needless to say, a few bugs left, but I should have split copies of [livejournal.com profile] cflute's and [livejournal.com profile] tibicina's concerts at ConChord by sometime this weekend.

My attempt to upgrade Matrix, the ancient Thinkpad that I've been using as the living-room browsing machine, to Lenny ended with no X and a mysterious hang. Considering its age and condition, I'm going to give up and either drop back to Etch, intall Puppy, or, more likely, give it an honorable burial in the attic. Harmony or one of the mini-ITX systems will work fine. I'll start with Dantooine, currently the bedroom computer, because Colleen won't be needing it for the next month or so. I'll have to come up with something to put it on.

Some good phone conversations: [livejournal.com profile] cflute on Tuesday, [livejournal.com profile] joecoustic today, and of course multiple conversations with Colleen. Still not as good as I'd like to be at originating calls -- it's all too easy for me to procrastinate them.

I slept fairly well last night, but woke up about 5:30 with a somewhat sore throat and the impression that I'd forgotten my facehugger. That or woken up, taken it off, and gone back to sleep. *sigh* I really resent the time I spend sleeping. Especially when I don't have anyone to sleep with. That's what I miss the most.

mdlbear: blue fractal bear with text "since 2002" (Default)

This post by [livejournal.com profile] madfilkentist led me a merry chase, past this web page and this article, to the idea of chronotypes.

Normal people have a circadian clock set pretty close to a 24 hour cycle, and don't have much trouble shifting it around. Owls have a cycle of longer than 24 hours, and tend to become night people, going to bed late and sleeping long hours. Larks have a shorter cycle, and become morning people, fading early in the evening and getting up early.

I used to be an owl. Back in grad school one of my classmates spent a year or two living on a 26-hour cycle; he would get back in sync with the world every other week. I myself was more likely to see dawn before going to bed than on waking up.

I seem to be a lark now. It's fairly recent; I think I was "normal" for a long time in between. It may have something to do with the facehugger. I enjoy the extra time in the morning, though it's too irregular to count on. Maybe that will improve over time. Sleep is pleasant, but I don't have time for it.

mdlbear: (hacker glider)

I've been pretty productive this week -- I think my strategy of staying the heck off IM may have something to do with it. My coworker [livejournal.com profile] finagler and I managed to slam together a demo -- for possible use on Friday -- in two days. Perl on my end, Python on his, plus a lot of stuff that we were already working on or thinking about. Fun!

No, you don't get to find out what it is. Not yet, anyway. And it's still very flaky; lashed together with metaphorical baling wire and duct tape. But still... feels good.

I'm beginning to wonder whether my recent emotional changes have come about as a result of the CPAP. The timing is about right -- I got it last November 8th.

We need to do some serious house-cleaning over the next couple of months. Our experience with the last couple of houseguests has made it clear that the sewing room really needs work if it's going to double as a guest room. Especially the closet, which is currently unusable. More upwhen, perhaps.

mdlbear: (healthy_fen)

(cross-posted to [livejournal.com profile] mdlbear and [livejournal.com profile] healthy_fen)

My weight this morning was down to 182. It hasn't been that low in... don't remember. Close to a decade, at any rate. Somebody at Baycon remarked that I'd lost weight. The diet is basically just low carbs, low glycemic index, and only high-protein snacks, Starting with a large high-protein breakfast. I lost about 2 pounds over the weekend.

I also noticed that I seemed less tired than I used to be during packing and load-out from Baycon. I worked efficiently and remained functional and cheerful during the whole morning. This was true of the last few cons, too. Some of that may well be the fact that the weekend didn't start out with a day of driving, but it may also be the combination of nose-watering and the facehugger giving me better breathing during the day and night respectively. Whatever it is, I'm not complaining.

During colds and allergy season, I seem to need to water my nose three or four times/day. Wish it was practical to do it around noon at work...

mdlbear: (facehugger)

No walkies today: grumble.

I should definitely have watered my nose sometime around lunchtime. I was in a hurry and didn't. Was very congested by the tine I finally did it, sometime around 7:30. Slight headache.

I do appear to still have my voice, and my throat isn't deteriorating; only very slight post-nasal drip.

mdlbear: (facehugger)

Here, courtesy of cpap.com's mailing list, is the TSA's official web page on Travelers with Disabilities and Medical Conditions.

[...] TSA has established a program for screening of persons with disabilities and their associated equipment, mobility aids, and devices. Our program covers all categories of disabilities (mobility, hearing, visual, and hidden). As part of that program, we established a coalition of over 70 disability-related groups and organizations to help us understand the concerns of persons with disabilities and medical conditions. These groups have assisted TSA with integrating the unique needs of persons with disabilities into our airport operations.

Includes pages about CPAP machines, wheelchairs, Assistive Devices and Mobility Aids, and quite a lot more. Think they've taken a bit of flak over this stuff? Take advantage of it if you need to.

mdlbear: (healthy_fen)

(Cross-posted to [livejournal.com profile] healthy_fen and [livejournal.com profile] mdlbear.)

It's been a while since I posted one of these, so let's see...

Went out for a walk this morning (twice around the Rose Garden -- yay! there are finally buds after the winter's drastic pruning) and somehow fell back into power-walk mode. I was a little surprised at how natural and unforced it felt, even after several months of walking with my hands at my sides or in my pockets.

I have been walking, but I haven't been keeping good track, or particularly consistent, since sometime in mid-January. (In part because I was doing other things with my lunch hour, for reasons that have mostly gone away now.) The last couple of weeks, though, have been pretty consistent.

My weight is down to 183 or so, from about 198 at the beginning of the year. I'm using a high protein, low glycemic index diet, and it seems to be working.

I've cut my flonase dose down from two to one squirt per nostril, twice per day. This seems to work even better than the old dose did before nasal irrigation, and doesn't seem to cause any bleeding. I sometimes forget the flonase after nose-watering; it's taking me an annoyingly long time to form new habits. But I can actually smell the flonase now; yesterday evening on the way home I smelled the star jasmine blooming next to the parking lot.

The CPAP is working. The [livejournal.com profile] flower_cat no longer complains about my snoring, and she reminds me to put it back on if I've taken it off to snuggle. I seem to need about an hour less sleep; 5 hours isn't unusual these days. They can have my facehugger after they pry it off my cold, dead face.

On the down side, I still tend to become easily addicted to things like LJ, blogs, and (more recently) IM. I need to stay the hell away from Second Life.

On the other hand, having finally gotten my life together, I seem to be in danger of forgetting where I put it.

mdlbear: blue fractal bear with text "since 2002" (Default)

Went out for a walk this morning by Los Gatos Creek; a little shorter than usual, because of some lingering discomfort from yesterday's leg cramps. It seemed to get better rather than worse as I went along but I didn't want to push my luck.

It was oddly different knowing that I was going to be walking there with a friend in a couple of weeks. I don't get to do that very often.

After that I went shopping. At Guitar Showcase I got a gig bag for our Casio keyboard, so that it would be easier to take to Consonance to be borrowed by the assorted keyboard players on the guest list.

After that I went to Fry's and picked up the APC 1300VA UPS they had on sale ($20 mail-in rebate). It's a little smaller than the 1500VA one I picked up a few weeks ago, but it'll do for the bedroom. Like the larger one, it can be permanently silenced, which means I can use it for the facehugger and the alarm clock as well as the computer, and not have to worry about getting rudely awakened by a screeching UPS.

(As an aside, this will free up the 420VA supply again; I'll probably put it back on Nova, the fileserver. That should give me about an hour's worth of uptime on the router and network gear.)

I also wanted to get 4GB of RAM, but discovered when I got up to the cashier that they'd given me 2GB. Don't know whether I misread the ad, or they just wrote me up for the wrong item, but it'll wait. It's not really all that urgent now, and it'll only be cheaper next time.

added: After Fry's I went first to Bed, Bath and Beyond, basically just across the street, to look at curtain rods. The plan is to be able to curtain off part of the living room (the part with the couch and bathroom access) to provide a little extra privacy for the guests we're expecting for the wedding.

After that, I went over to Southern Lumber to buy wood for cutting boards: my usual wedding present. It took a lot of looking, but I finally found a piece of nicely-grained maple that will make two cutting boards.

Finished the loop by stopping off at BevMo for gin. Made a second, briefer shopping run to Safeway for ground beef, grated cheese, and tortillas so the Wolfling could make tacos for dinner.

mdlbear: (healthy_fen)

(Cross-posted to [livejournal.com profile] healthy_fen and [livejournal.com profile] mdlbear.)

There have been several major changes in my approach to health this year, mainly brought on by a belated awareness of impending mortality and a couple of alarming sets of symptoms.

Walking: I've been getting in roughly three-mile walks most of this week. It's very frustrating: in order to avoid leg cramps I have to either walk slowly (i.e., my old pace that didn't give me much actual exercise) or shorten my stride to what to me is an unnatural degree. These days I usually pick the fast pace and short stride, but it's annoying to have to make the trade-off. I end up walking at about the same speed (3mph) regardless. I've gone back to power walking to compensate. Hopefully when I'm back at work I can cut off the usually-fascinating lunchtime conversations and the temptation to dive back into LJ in time to walk for an hour during the week, too.

Facehugger: I finally built a little shelf on the dresser beside the bed, and just last weekend bent up a piece of coathanger wire to hold up the hose. The combination really helps; it's a lot less likely to leak now. I can also sleep on my back without waking up -- that's a big win. I can't say there's been a huge difference in how sleepy I get or how much sleep I need, but I think there's been some. The silliest thing about it is having to shave about 1cm off the top of my mustache in order for the mask to seat properly -- first time I've had to shave in about 40 years. Well, it was a good excuse for a new backpack, anyway.

Nose-watering: Watering my nose seems to be roughly as effective as taking a standard dose of sudafed, and lasts for roughly as long: 6-8 hours. I've fallen into a routine: morning, before dinner, and about an hour before bed. Morning is, of course, combined with making coffee, and takes about 15-20 minutes. The evening wash is combined with brushing my teeth; I've gotten a bit better about that, too.

Diet: This is the newest bit of attempted behavior modification. It's my understanding that a reduced-carbohydrate, low-sugar diet is good for reducing both cholesterol and weight, so I'm going to try it. It's hard -- potatoes and pasta are both popular in this family. At least the rice we use is basmati, which is unique in having a low glycemic index, and I prefer whole-grain bread anyway. I've stopped eating fried-eggs-on-toast for breakfast and switched to omelettes. At least dark chocolate, and one alcoholic drink/day are still on the diet. By doctor's orders. So there.

With a little luck and more determination than I've shown to date, I might even survive another decade. We'll see.

mdlbear: (facehugger)

My CPAP pillow arrived Monday, and my nose-watering pot came this morning just as I was leaving for work. Here are some first impressions:

The CPAP pillow is a great design, and a size that looks good for traveling. The shape keeps my head in the right place, keeps me on my side, and gives lots of clearance for the nost-mask and hose. So it's particularly unfortunate that it's too hard and too high for comfort. I woke up Tuesday morning with a stiff, aching neck, and went back to my old memory-foam pillow.

I'm going to trace the CPAP pillow's shape onto some memory foam (from the other pillow sitting in the closet because the [livejournal.com profile] flower_cat doesn't like it) and see how that works.

My neti pots (nose-watering pot) arrived this morning, skillfully packed into a box that was just barely big enough. Guess they ship a lot of them. The package also contained an instructional video on a CD meant to play on a PC. Worked fine on Linux (with totem) once I mounted the disk and identified the video file.

Worked beautifully, though I had a little initial spillage. Gentler than the NeilMed kit, but seems to be at least as good -- maybe better -- at cleaning out the gunk. The video and instruction book both had directions for drying the nasal passage after washing, which is something the NeilMed kit omitted.

mdlbear: blue fractal bear with text "since 2002" (Default)

We're back. The facehugger has really made a difference -- this was the first return trip in several years where I wasn't yawning continuously and fighting sleep for the last 150 miles. I yawned a couple of times, and felt a little sleepy a couple of times (a seven-hour car trip will do that), but I didn't feel as though I was about to fall asleep. Yay!

Many goodbyes and a couple of good conversations this morning. Having a CD out gives me something new to talk about, which is always a good thing.

Total CD sales at the con: 1. Oh, well. Eric sold a few, I think. Having a CD also gives one an excuse to hang out with the dealers.

mdlbear: (ccs-cover)

It occurs to me that my last Loscon post was Thursday, so I have a bit of catching up to do. Fortunately it's been mostly concerts and conversations so far, so there isn't as much to report as might be.

AJA and Dr. Jim Robinson both gave concerts yesterday -- that was good. Dinner with [livejournal.com profile] selenesue in the "good restaurant". Some open filking that started breaking up around midnight; I went up to the parties and finally got in about 1:30. Slept well.

Side note on the facehugger -- I seem to be getting used to it. I'm still having some trouble getting the mask tight enough so that it doesn't leak, and a little trouble getting to sleep. But by the time morning comes around I sometimes have to check to see whether I'm still wearing it, the way I do with my glasses sometimes. I can live with this. Ordered a CPAP pillow, which is back-ordered and should be back in stock later next week.

My concert (with the [livejournal.com profile] chaoswolf on drum and backup vocals) was today at 2:00, and seemed to go very well indeed. Smallish audience, but I think my performance was better than usual. Three weeks of practicing every couple of days with the Wolfling seemed to help. Got a decent recording with the H2. I think the drum came out too loud; we'll probably have to skip it when it's just two of us, and drop down to something quieter like shaker.

I'll post the set list later; for now, I'll just note the shortnames: cicero bugs rosie tool rrprayer barratry stuff bigger. Obviously I need a script that conses up an Emacs abbrev file, or something.

I'm no good at reporting conversations. I'll just note a good talk around dinner with [livejournal.com profile] mysticfig, mostly about CD production, and a couple of nice chats during soundchecks with Moira Stern.

Right now I'm avoiding the "Banned from Argo" sing; I'll probably go down in half an hour or so. The [livejournal.com profile] flower_cat is napping; she -- and a lot of other people -- seem to be suffering from an excess of air conditioning. Doesn't seem cold to me, but...

mdlbear: (hacker traveling)

So here we are at the LAX Marriott. I couldn't get the wired internet connection in the room to work; the wireless sucks rocks but it's better than nothing. I'll bug the hotel in the morning.

I've already bugged the hotel about the lack of an outlet near the bed for the facehugger: they sent up a bloke with a power strip, extension cord, and what sounded like an Aussie accent. I can haz facehuggr now. The Wofling has just put herself to bed. She very sensibly brought an air mattress this time (sharing a bed with her little sister is Right Out).

The trip, down US 101, was uneventful. It's much prettier than I5 and the traffic is consistently less (though it was heavier this year than I've seen it in the last decade of Loscons). About 7:30 including the break for lunch at Pea Soup Anderson's.

Annoyingly, I snapped off a fingernail unloading the car. Even more annoyingly, it was the right forefinger, which is what I use most for fingerpicking. And of course there's no superglue -- I forgot to pack it. Could have used it to extend the stub a fraction. I can get by, though. Won't sound quite as clear, but the difference is surprisingly slight.

The [livejournal.com profile] flower_cat, [livejournal.com profile] chaoswolf, and I had dinner with AJA and Kore; I hadn't really had much of a conversation with K before, so that was good. There was enough discussion of CD production and related matters that I figured I could treat it as a business expense. The Y.D. joined us briefly for desert; she'd already had dinner up in the Con Suite.

I should probably go to bed soon.

mdlbear: (facehugger)

We're all packed for Loscon -- the [livejournal.com profile] flower_cat and [livejournal.com profile] chaoswolf are out getting bagels and lox for breakfast. It works out to about 3 items per person -- quite a large pile, but not really all that much. For the first time, the collection includes a rollycrate with my facehugger and my favorite pillow. I wasted an hour yesterday trying to find a good CPAP pillow, but there doesn't seem to be a local source. The one I have is a memory-foam neck pillow -- it has a sharp drop-off on the side so that I can hang the facehugger over the edge while the foam keeps my head relatively stable. It works quite well, but it's too big for travel unless we're driving. I may resort to tracking down one of the others we have around the house, and cutting a chunk off the side. What I'd really like is an inflatable.

Concert early Saturday afternoon. The [livejournal.com profile] chaoswolf and I have been practicing for the last two weeks; we both needed it. We'll have to practice more regularly from now on.

mdlbear: blue fractal bear with text "since 2002" (Default)

... but not before at least briefly mentioning what I did today. Went for a half-hour stroll by the creek -- not much exercise, but a nice morning, all muffled in fog and comfortably cool.

We had bagels and Scottish salmon for brunch, then headed up to San Francisco for the Lamplighters gala. This year they only had one performance, and they combined it with an auction. Too rich for my wallet, unfortunately, but a lot of fun as a spectator sport. They worked the live auction part (mostly it was a silent auction out in the lobby) cleverly into the end of the first act.

I should mention at this point (for those just tuning in) that the Lamplighters are world-class Gilbert and Sullivan (and other light opera) company; the annual Gala is a parody fundraiser. This year's title was "Harry Patter and the Willing Suspension of Disbelief - A Series of Unfortunate Musical Numbers". To make a long and extremely funny tale much too short, the auction was woven into the plot to raise money to renew the 1500-year lease on the Hogwash School of Witchery and Wizardcraft, in order to prevent it from being turned into a big box retail establishment called Vol*De*Mart... You get the idea.

It was around 7:30 by the time it was done, so we skipped the usual champagne reception and headed over to the Cliff House for a somewhat expensive but very tasty dinner. The kids were happy -- they serve mostly seafood.

Now that the [livejournal.com profile] flower_cat's fish allergy (if it ever really existed and wasn't just a coincidental flareup of her Crohn's disease) has subsided, we're getting more fish for dinner. This is a Good Thing.

I wasn't particularly sleepy coming home, but whether this can be ascribed to my new facehugger or to the stimulant=-based decongestant and the four cups of coffee I had with dinner is, as usual, an open question.

But I think I ought to go fall over now.

mdlbear: (facehugger)

Got to sleep about 11:00, got up around 7am. I seem to remember waking up once, somewhere around 1:30am. The only lingering problem seems to be the nasal congestion. Don't know what to do about that, except keep taking decongestants in my evening pill salad, and worry about what happens if I get a cold.

mdlbear: (facehugger)

After two nights with my prescription facehugger, I can't say that it's made a huge difference in how sleepy I feel in the evenings (I'm practically falling over as I write this), but I do seem to be sleeping much better than I did the first week. I still wake up two or three times, but have little trouble getting back to sleep. It may just be that I'm still catching up on a week's worth of too little sleep. I really don't like going to bed this early.

mdlbear: (facehugger)

... they read its entrails smart card, write you a prescription (for 9cm H2O, in my case), and give you a shiny new facehugger. Well, strictly speaking, you keep the mask and tube, so it's the old facehugger with a new pump on its tail. The new one is about half the size of the old one, and powered via a wallwart.

I'm still not sleeping all that much better, but I'm not feeling quite as tired in the evening.

mdlbear: (facehugger)

Slept pretty well; woke up at 2-something and 5ish. Would have been quicker getting back to sleep the second time if I hadn't misread the clock again and waited for the alarm (which goes off at 6:15 normally). I'm a little surprised at how quickly I've gotten used to it: the straps are now tight enough that it doesn't leak to an objectional extent, and a couple of times I caught myself reaching up to verify that it was really on. The power of positive reinforcement, I guess.

Tomorrow my pet alien goes back to Kaiser where they will read its entrails memory card and sell me a shiny new one to take home to be my very own little pet alien.

Then I get to somehow attach a shelf to the side of my bed to hold it, and attach a hook to the dresser for the mask. Right now it's on the shelf that pulls out over the dresser drawer, which works pretty well but makes it difficult to get at the drawer (which I use for underwear and socks), and even more difficult to get at the next drawer down (which I use for T-shirts).

Those among you getting bored by this subject can take heart in the fact that I don't anticipate posting many more of these except to mark interesting events, such as the acquisition of new pillows or masks or the sudden appearance of a chestburster.

mdlbear: (facehugger)

Slept much better last night: woke up, but went back to sleep. Turning the machine off for a few minutes seems to reset it so that I'm not fighting the mask leakage. Or something -- I'm not all that alert at two or three in the morning. Of course, the fact that I was falling-over sleepy must have helped.

Got up with the alarm at 6:30 feeling as though I could have used another hour's sleep, but basically OK. Need to see what my choices are for masks and pillows; I'll find out more at my appointment on Wednesday.

mdlbear: (facehugger)

Woke up somewhere around 2:30 or 3:00 and could not get back to sleep. Got out of bed around 4:00, read LJ, wrote comments, did some other stuff on the computer, tried again at 5:30. No go. Gave up at ~6:15.

I mean, it would be really nice if I could survive on 3 hours' sleep every night. I just don't believe it.

mdlbear: (facehugger)

I slept better last night: didn't wake up until about 3:30, and had fewer problems with the mask. Neck not as stiff, either. I've started using my my timed-release phenylephhrine plus guaifenesen horse pills caplets rather than using Afrin, which suffers strongly from bounce-back. They don't seem to be keeping me awake, so that's good.

Not feeling quite as sleepy in the evening, and was up until 11:30 or so last night, though I still seem to get sleepy after meals. Probably an unrelated effect, then.

mdlbear: (facehugger)

It went a little easier last night. I shaved off about 1/4 inch of mustache to give the nose-mask a place to sit; it was much more comfortable. Got a couple hours of good sleep, but spent the rest of the night waking up with either a stiff neck or a noisy leak. I was never able to keep the air from leaking out, cold and noisy, onto my face.

I use a memory-foam pillow with an abrupt, not tapered, edge, so I was able to let the air-hose hang off the side. It helped a lot, but I'm going to go looking for CPAP pillows -- there seem to be several varieties. Some nasal congestion, but not as much as the night before. Tonight I took my timed-release phenylephhrine around dinnertime -- that should help.

I was still feeling achy, so no walk at lunchtime. And it may rain over the weekend, which would be unfortunate.

Felt a little more alert than usual in the morning, but still felt a little sleepy after lunch. And now. But I'm not sleeping well, or nearly long enough. We'll see.

mdlbear: (facehugger)

(Side note: I'm not putting the name of the medical condition (s. a.) or the device (cp@p) in the post or the tags because they seem to attract comment spam. Follow the tags if you can't figure it out.)

So I got to bed somewhere around 11:30, and got a couple of hours of good sleep. Was awakened somewhere around 2:00 or 2:30 by the [livejournal.com profile] flower_cat, and had trouble getting back to sleep due to a stuffy nose (treated with Afrin) and problems finding a comfortable sleeping position that didn't make the mask leak. That's going to be an ongoing problem, but I expect I'll eventually get used to it.

I speculated at the time that the three hours' sleep I got at first might have been the equivalent of my usual six, but probably not.

I'm going to try shaving a bit off my mustache to see if that helps in seating the mask.

I need an icon for this, don't I? Anybody with the appropriate screencap from Alien?

mdlbear: blue fractal bear with text "since 2002" (Default)

Today I went in to Kaiser to get the results from last week's sleep apnea test. I passed. Or failed -- I'm not sure which result is which. Anyway, I tested firmly positive, so they sent me home with a facehugger. This one, on loan for a week, is the test version: it varies the pressure and figures out what I need. Then I go back in a week and get a permanent one programmed for whatever it figures out.

Stats: Recording time: 6.75 hrs. Apnea/hypopnea index: 23.5/hr; O2 saturation: 91% average, 80% minimum; RERA (wakeup) index 4.5%. (I actually got only about 4.5 hrs sleep, so the number of events is actually higher.)

mdlbear: (grrr)

I did not have a good night last night: straps, wires, and tubes are not conducive to sleep. Last night was my night for the sleep apnea test; they give you a gadget to wear that straps on and includes two strain-gauge bands, a tube going up to your nose, and an oxymetry sensor that clips onto a finger. They really prefer 5 hours worth of sensing; they'll be lucky if they got four. I think I finally got to sleep around 2:30, after taking a flexeril at 2:00. After trying the couch -- the [livejournal.com profile] flower_cat was wakeful for different reasons.

Tried adding niacin and B12 supplements to my daily pill salad. The recent tests for those were in the normal range, but I figure it's worth seeing whether they help the neuropathy and triglycerides anyway. I'd forgotten about the facial flushing effect from niacin -- impressive.

mdlbear: (healthy_fen)

[Meant to cross-post this from [livejournal.com profile] healthy_fen yesterday. Update below.]

My treadmill test was this morning. The good news is that there's nothing at all wrong with my heart. (The pain in my left shoulder immediately went away, and has not been back. Right.) The bad news is that 3mph on a 15% grade was hard -- harder than it should have been. And the way my pulse shot up as they ramped up to it says that I'm not getting enough exercise.

Walking 2.5 miles at lunchtime is all very well, but I can apparently walk all day on the flat at that pace without breaking a sweat, so it's doing my cardiovascular system very little good. To get a proper workout I'd have to push the pace a lot, and I'm not sure I can do it without injuring myself. May have to look into the gym (there's one in the building where I work, and it's free for everyone who works there (a personal trainer is $50/hour or so) -- I've been working there for over 15 years and haven't been inside once).

Another option is ankle and wrist weights; I'm definitely going to try those, because even if I do use the gym occasionally I'll want to keep walking. And a treadmill at home is a definite possibility.

I did go out for a walk at lunchtime; a little faster than usual, and I went over the hill on the way out. Not on the way back, though; I felt the whole time as though I was on the edge of shin splints, which I don't need. Been there.

Sleep apnea test tomorrow class today.

Wednesday: The questionaire I filled out at the snoring/sleep apnea class pegs me at 14 or so on the sleepiness scale. 7 or higher is abnormal. There may be other explanations, but it's pretty clear that a sleep study is at least indicated.

Managed a 2-mile walk today at a brisker than usual pace; not clear that I can keep that up without shin splints, and it probably wasn't long enough to be a good workout. Grump. Taking shorter and faster steps seems to help, but I may need a consultation in the gym to figure out what the real problem is.

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