mdlbear: blue fractal bear with text "since 2002" (Default)

Went to the Dickens Fair today with Colleen, after determining that none of the kids intended to get out of bed before 10am. That's actually what we were hoping for -- they always get bored before we do. Not to mention the expense of buying them tickets and meals.

Our only non-consumable purchases were a purple vest and cravat for me, and a set of pewter switchplates for the house. (We were able to save on consumables because we each ate a good breakfast before we left: a single plate of Greek appetizers, plus avgolemono soup for me because I couldn't eat the ones with gluten, was enough for the two of us.)

We took Colleen's new wheelchair -- the big front wheels make it pretty easy going over minor obstacles, though a couple of larger bumps still required turning the chair around and pulling. The handbrakes on the push handles are fantastically convenient. I still need to adjust the footrests, though.

I found myself singing "Wheelin'" under my breath at a couple of points.

mdlbear: portrait of me holding a guitar, by Kelly Freas (freas)

Busy being toast. Concert last went pretty well; good reaction to Wheelin' and QV. Lost a longer update because of stupid Apple keyboard conflicting with 30 years of Emacs habits. Pants not bankrupt, but required a large infusion of cash this morning. Set list later.

mdlbear: blue fractal bear with text "since 2002" (Default)

Life is a war, and nobody gets out of it alive. The best you can hope to manage is an honorable defeat.

 

The River winds back and forth across the wide, unmarked valley between Love and Friendship. Which side you're closest to at any given moment is less important than who's beside you on the journey.

mdlbear: blue fractal bear with text "since 2002" (Default)

After a nice walk (which I cut a little short because of pain in my right calf) and lunch, we went over to the nearest mall for some indoor exercise, and in the Cat's case just to get out of the house and have a little time with me. The Y.D. tagged along as well, for the shopping.

Parts of the upper floor in the mall are carpeted. It is noticably harder to push a wheelchair on carpet.

The Y.D. complained that I was walking too fast. In a mall. Pushing a wheelchair. Right. It's true that, given a clear stretch of hallway, I can get going at a pretty reasonable pace.

I got my exercise. No shopping to speak of, but that wasn't the objective; I'd done my financial damage earlier in the afternoon.

Made dinner: rice, and chicken drumsticks in a (bottled) Mexican lemon/lime marinade (in a non-stick 12" frying pan with a little olive oil and butter). Yum.

mdlbear: blue fractal bear with text "since 2002" (Default)

At the museum yesterday we spotted a man on a nice little folding scooter: almost certainly this one. Either folds up or comes apart; the combination of small wheels, plastic seat, and small battery means that it's probably limited to light-duty, mainly indoor use, but it looks especially convenient for travel. A bit pricy, though.

From my Mom, a link to pomegranate.com, an art publishing house.

From [livejournal.com profile] gmcdavid, this post linking to an obituary for the last surviving member of Nicolas Bourbaki. I've read a couple of their books - crystal clear even with my rather limited high school French. Sad: another Great Old One gone.

As long as I'm clearing my tabs, here's a link to an article on organizing a web site with git, on linuxworld.com.

mdlbear: blue fractal bear with text "since 2002" (Default)

...So why do I need a wheelchair?

Let's get one thing straight at the outset: you don't "need" a wheelchair. If you did, you wouldn't be asking the question. So let's talk about why you might want to use a wheelchair, walker, or cane even when you don't need it.

Since some bright homo erectus discovered that it was easier to throw a rock at a passing antelope rather than spend the rest of the day running it down, Man has been a tool-using animal. Tools don't just make impossible tasks possible; they can also make difficult tasks easier and safer. That's where wheelchairs, walkers, and canes come in.

 

When I wrote "Wheelin'" a few days ago my main objective was to help a friend get used to the unfamiliar and uncomfortable idea of asking for a wheelchair to get through the airports on an upcoming trip. It turns out, based on the reaction to this post and some subsequent conversations, that it's a pretty common problem.

It's only natural to feel embarassed and uncomfortable the first time you walk up to that counter and ask for assistance. It's perfectly normal to expect to be challenged to prove that you're disabled; to feel that you don't deserve help because you can, after all, walk.

What you have to realize is that the airport staff are interested in only two things: getting people through the airport and onto their planes as quickly and smoothly as possible, and not getting sued for mistreating someone who's handicapped. And they'll welcome you and treat you well not only because they're trained and paid to do so, but because they know that word-of-mouth advertising works both ways. They really want you to be able to tell your friends, "Alaska Airlines really treated me well when I flew to Seattle with my wheelchair; I'm sure you'll have a great trip too."

You don't have to prove that you need assistance. There are literally hundreds of conditions that might make it harder for you to stand in line, walk through the airport, walk up a ramp, and get into and out of your seat. Most of them don't show. The friendly person at the "accessibility" desk doesn't care whether you're arthritic and find it hard to walk, have a chronic bad back and can't stand still in line for more than five minutes, or fell in the parking lot five minutes ago and twisted your ankle. She will happily call for a wheelchair and somebody to push it, and fetch a free cart for your -- and your partner's -- luggage. Let your travelling companion, if you have one, deal with the luggage, and let the airport staff push the chair. They know exactly where they're going.

Don't hesitate to get on the plane early, with the old people and the families with kids. Everybody else will, if they have any damned sense, thank you for not blocking the aisle when it comes their turn to get on board. You don't even have to arrive at the gate in a wheelchair to take advantage of this one. And if you don't think you can handle the ramp or the stairs up to the plane at an old terminal like San Jose, they'll happily provide a couple of hunks of brawny eye candy to strap you into an aisle chair and carry you up. Yeah, it's undignified. So are a lot of other pleasant experiences I could name. Enjoy it.

It's not just airports, of course. There are a lot of places where a wheelchair is, while not absolutely necessary, a huge convenience. The zoo, for example. And at some point you may want to consider a powered chair or a scooter.

 

There are other places where a wheelchair just won't go, and that's where walkers come in. Sometimes you just want to get from one room to another, or have someplace to sit and rest while going through a large store. Colleen has two: a fancy one with four wheels, a seat, and handbrakes (named Johnny in spite of the fact that they don't make a bourbon with a purple label); and a smaller one with two wheels that folds flat for travel and just naturally acquired the name Frankie. (The wheelchair is Igor.) Walkers are comparatively cheap; Johnny was a little over $100. They're also light enough that even Colleen can handle tossing one into the back of her van if she needs to.

And let's not forget the humble cane. Get an adjustable, folding cane (they come in a wide variety of colors), put it in your purse, backpack, or shoulder bag, and ignore it. Every once in a while you'll find yourself wanting a little extra leverage getting out of a car, or a little something to lean on standing in a line. They have other uses. I'm not going to advocate using your cane to trip the occasional idiot who thinks that a handicapped person is an annoying obstacle rather than a human being who deserves to be treated with respect. But the mere thought that you could wield your cane in that matter can be a great morale booster.

Colleen's friend Bev, whose story ends "Quiet Victories", also told us of her ageing grandmother who beat off a mugger with her cane. He tried to claim that it was the cops that beat him to within an inch of his life; he wasn't expecting her to show up in court, weapon in hand. Even without a concealed sword-blade (I understand that the TSA frowns on such devices these days), a cane can be a formidable weapon.

And finally, remember how we started this essay, walking up to the accessibility counter at the airport and being embarrassed because you don't look handicapped? If you're leaning on a cane, nobody is going to think that, even for a second.

mdlbear: blue fractal bear with text "since 2002" (Default)

When I wrote "With her lover right behind her lookin' fierce and proud" in the last verse of Wheelin', I wasn't just trying to fit the rhyme and meter, and I wasn't just trying to describe [livejournal.com profile] cflute, either. Not only does the world look different from a wheelchair, it looks rather different from behind a wheelchair, too. It was a little surprising.

I'd expected to be feeling a fair amount of resentment at spending my time pushing Colleen's chair, just as I occasionally feel a twinge of resentment at doing an extra chore at home when Colleen isn't up to it. It will probably happen occasionally, but so far the dominant emotions have been happiness and pride at doing something useful for someone I love. Happiness, too, at being with her instead of forging ahead at my own pace, or trudging along beside her feeling resentful at having to walk at a pace that's nearly as bad for my back as standing still. And I'm not complaining about the workout, either.

I feel a little bit fierce, too. Protective, and even a little aggressive. Normally, trying to get through a crowd of people, I'll stand still and silently wait for an opening unless I'm in a real hurry. Even then I feel diffident about asking. Pushing a wheelchair, though? Sorry, buddy, I have the right-of-way. And, line or not, I'm not at all shy about walking past it to the handicap counter in the airport and asking, politely but without hesitation, for assistance.

I see the terrain differently. Small slopes suddenly become important. I plan ahead: is that ramp steep enough that I'll have to go down backwards? Will I be able to get back up? I look for the curb cuts. Learn to go over door jambs backwards, or diagonally, rather than jamming both front wheels against the bump and getting stuck. It becomes a contest: me and the chair against gravity and geometry. Sometimes gravity wins; that's awkward.

There's no use complaining; that's just the way life is sometimes. What still surprises me was how little I find to complain about.

mdlbear: portrait of me holding a guitar, by Kelly Freas (freas)

My Toastmaster gig at ConChord is now a mere three weeks away. And now that I have reasonably solid timings on QV and Wheelin', I can actually plan out my set list -- as long as I don't write anything new in the mean time. The probability of getting QV on a single is getting lower, but it's still non-zero.

Wednesday was fun. Colleen's friend Bev had to leave early, just after Joyce and Jordan arrived, but we managed to squeeze in her verse of QV, which she hadn't heard. Got the hoped-for reaction: shocked recognition, surprise, and laughter, in that order. Made of win.

Paper Wings [mp3] and Wheelin' [mp3] are coming together pretty well; the latter is especially not bad for having been written just this Monday. We also tried out Quiet Victories with all the extra verses (to date) and some audience participation on the ending. I'm still pretty much winging it there -- that and the intro need work -- but it is going to be flat flaming fantastic.

aside to cflute and tibicina )

If I'm going to record Wednesdays on a regular basis for more than just scratch tracks, I'm probably going to need separate mics for the performers to get a reasonable mix with the drum.

mdlbear: portrait of me holding a guitar, by Kelly Freas (freas)

Having obtained approval from [livejournal.com profile] pocketnaomi, who inspired commissioned it by promising to come to ConChord if I would sing a song either by her or about her, here it is at last.

Note that the audio files were done during last night's practice session with Joyce; the tune is still quite unstable, and some of the words have changed overnight, as they often do. I'll probably have a better one tomorrow, since Joyce is going to try to make it down for Wednesday.

Steve.Savitzky.net/Songs/wheelin/ [pdf] [ogg] [mp3]

Wheelin'

© Stephen Savitzky. Creative Commons by-nc-sa License Some Rights Reserved.

When you see her in the evening in a bright green dress
Walking fast down the hallway you might never guess
That the lady has a weakness she's reluctant to confess.
No, you might not notice when she's dancing reels
That she made it through the airport on a set of wheels,
And she still isn't certain that she likes the way it feels.

    With her lover right behind her lookin' tired but proud
    They were wheelin' their way through the airport crowd;
    The way it made her feel made her want to weep out loud. 
    'Cause they were cuttin' past the line at the TSA
    Asking healthy young people to get out of her way
    Savin' her strength to make it through another day.

When she has a good day she can walk a mile
Dance through the evening with grace and style
Greet her lover at the door with a tight embrace and a smile;
Next minute she's collapsing like she's half-way dead
With a fire in her body and an aching head
And she'll pay with pain and the rest of the weekend in bed.

    So with her lover right beside her lookin' calm and cool
    She walks up to the counter feeling like a fool
    And tries to tell herself that a wheelchair's only a tool.
    Soon she's wheelin' past the line at the TSA
    Feeling weird watching people getting out of her way
    But it's the easiest journey in years to the end of the day.

Well, her body is a battleground and life's a war,
And she's lost against her limits many times before;
But she's still fighting with a few new tricks in store;
Because a wheelchair is a weapon, not a mark of defeat
And she can stay standing longer with some time off her feet
The battle isn't over, and winning will be sweet.

    With her lover right behind her lookin' fierce and proud
    They'll be cutting a swath through the airport crowd
    The way it makes her feel will make her want to laugh out loud.
    'Cause she'll be wheelin' past the line at the TSA
    Watchin' tough young punks scurry out of her way
    Savin' her strength to make it through another day.

    Yeah, savin' her strength--to fight another day.

This song is the answer to ``I can walk, damnit! What do I need a wheelchair for?'' Once I learned that Naomi was booking a wheelchair for the airports at both ends of her flight to ConChord, it all fell together in a day and a half and promptly attached itself to one of my blues-style noodling patterns.

It's remarkably hard to write a song "about" someone that's both specific enough to be about her, and yet might be of interest to more than a handful of people. But since you might be in a similar situation, or you might know someone who's in a similar situation... (oh, wait -- that's another song altogether).

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